Our son was 2 years and 11 months old when we got the diagnosis.
My wife and I sat in that room, overwhelmed. They handed us paperwork — pages of it. Links. Phone numbers. Names of agencies. No one told us what to do first. No one gave us a roadmap.
We started private therapy right away, part of early-intervention. We worked with the school to build his first IEP, though we had no idea what to expect in an IEP meeting, what our rights were, or what to ask for. Our son went to speech and OT at one place, and another therapy at a different place. There was no coordination between his school and his two private therapies. We were the only bridge, and we were exhausted.
Things moved so fast we couldn't get ahead of them. He transitioned from mainstream to a specialized public school. Every new provider meant re-telling the whole story. Every annual IEP meant digging through folders for documents we'd filed somewhere. Every milestone came with new paperwork, new programs, new acronyms.
I'm a technologist. I've spent over two decades building products, working in IT, and more recently, living and breathing AI. I've always thought: someone should build this for parents like us.
Now I'm building it. But before I write a single line of code, I need to talk to parents who are in the middle of this journey — or who've already walked it. I want to understand what would have made the biggest difference for you.